Hi, my name is Cat Almeida. EB sufferers in Portugal cn now receive care and advice from a dedicated EB Clinic run by Drª Carolina Gouveia in the Santa Maria hospital, Lisbon.
DebRA Portugal We will be fund raising across the country to raise money to make the lives of the Butterfly Children and their families easier. Please join us in any way you can. This horrendously painful condition needs to be profiled extensively, please learn more by visiting www.DebRA.org.uk, or www.debra.pt, visit You Tube: The Boy Who Lost His Skin/Johnny Kennedy, or contact me for details. All branches of DebRA are self funding - please find it in your heart to help. Thanks to everyone. X